Monday, 12 September 2016

A Cancer Reprieve

The results are in From the August 22 2016 CT Scan. It turns out that the two slightly enlarged lymph nodes have not changed in character since before my operation December 6 of last year. So that is good news, since there is no indication of cancer there.

Also, the two nodules on my lungs that were evident in May are not now visible. I seem to be vitually cancer free at the moment. Dr North the oncologist said on the phone, "There is nothing to be concerned about at this time."  I will next see him in Yellowknife sometime in January 2017. However, he simply does not believe in naturopathic healing or in nutrition having anything to do with cancer treatment even though proper nutrition improves immune system health and hence the ability of the immune system to kill cancer cells. Go figure. I guess I am just a statistic to him I am the one in 100 or one in 500 or whatever of renal carcinoma patients that experience a complete regression in Stage 4 cancer. Uh-huh!

I personally attribute the reduction/elimination of cancer cells to Iscador (from mistletoe) injections 3 times a week, as well as concentrated turmeric (curcumin) daily. Them there cancer cells and tumours don't have a chance. They are targeted for destruction!!

It is true that abnormal cell growth that may become sources of cancer tumours is alive and well in our bodies virtually all the time. However our immune systems are able to deal with the dispersed abnormal cells and wipe them out.

Dr Fairey mentioned that once a kidney starts to behave in an abnormal way it won't get better. It will stay that way! I take that as a challenge. Because the GFR rating which tells how well the kidney functions to discard body wastes is gradually increasing. Back in early 2016 it was between 35 and 40. Lately it has been as high as 47. So I am taking it as a challenge to use proper nutrition to improve kidney health.

Thursday, 1 September 2016

In The Danger Zone

More than 10 weeks have passed since my last blog entry in mid-June. The summer has been a busy one. Time to catch up. I chose the subject name for this post, In The Danger Zone, because it it so easy to suffer from apathy. Because there seems to be no real danger right now. My previous CT scan on May 16 only showed two small 5mm nodules in my lung plus a slightly enlarged lymph node in my chest. So the temptation is to be very nonchalant about the whole thing and forget about cancer altogether. However, to stay out of the Danger Zone I must live "as if" the cancer is aggressive and spreading. I must keep a really positive attitude to help both my immune system and my quality of life in general.

The latest update is a CT scan and visit with Dr Fairey the surgeon on the previous Monday August 22, followed by an appointment with the oncologist Dr North at Cross Cancer Institute in Edmontnon on August 23. Dr Fairey and Dr North both remarked on how very healthy I looked. That is both good news and bad news. The good news is that the cancer probably has not progressed. The bad news is that Dr North has now lost interest in my case. I am not sick enough for his serious attention! He didn't even take a quick online look at the CT scan before our appointment! He will phone me next Tuesday with the results of the Aug 22 CT scan.

The sad thing is that the medical profession is only interested in treatment for symptomatic disease. There is not interest in disease prevention. I mentioned my Iscador subcutaneous injection treatment to kill cancer cells to North and he almost yawned! He said if that made me feel better from a psychological point of view  then go for it.

The GFR for my kidney was only 37 so they would not give me intravenous contrast, which means that from now on I will be scanned in Yellowknife with some contrast in the one litre drink beforehand. My GFR has been as high as 47 from recent blood tests. According to the med folks kidney function cannot be improved much and that it deteriorates with age. North was of the opinion that my GFR would never increase no matter what I did. However, since I have reduced creatinine and increased my GFR as high as 47 I am going to keep trying. At the very least I can prevent kidney failure in the future (where the GFR falls to below 20 and dialysis is the only option). I am going to seek the help of my doctor here in Inuvik, Dr Gail Robson, so see how nutrition can be optimised for my kidney.

Now I get on my nutrition rant again. It is a shame that the medical profession no mo more about nutrition than to recommend the industry-sponsored Canada Food Guide! I look forward to the new Guide which apparently has thrown out industry sponsorship. And Naturopathic Doctors and nutritionists are almost totally ignored. However, I continue to attribute my diminishing cancer to high immune system function governed by nutrition and supplements such as high dose curcumin to help T-cells target cancer cells and destroy them.

Drugs, drugs, drugs! An article in the 2016-07-01 edition of the Guardian Weekly has an article entitled Cancer hope higing in your bathroom. Talking about every day medicines like aspirin etc are seen to have beneficial effects in fighting cancer. A certain Pan Pantziarka, a coordinator of the Repurposing Drugs in Oncology project is quoted: "Basic evolutionary biology tells us that cancer is a complex, adaptive system that evolves resistance to very closely targeted agents." Of course, it is great that there is a lot of innovation happening in the cancer drug world and how to deliver the drugs to target cancer cells. For example, see the recent CBC News article:




So what about nutrition? What about insulin resistance and high blood sugar, allowing cancer cells a growth spurt? Our own body's immune system is all we have to fight cancer cells, yet when we eat high sugar foods the immune system almost shuts down for a few hours - again providing cancer cells with a growth spurt opportunity. Here is a good link - why not starve cancer to death?!:

http://www.nytimes.com/2016/05/15/magazine/warburg-effect-an-old-idea-revived-starve-cancer-to-death.html?mwrsm=Email 
It is a heavy-duty New York Times article that again points to the importance of high sugar diets in feeding cancer cells.

That is all for now. After my discussion with Dr North next Tuesday, and after receiving the radiologist's report of the Aug 22 CT scan, I will update the blog again.





Tuesday, 14 June 2016

Some sobering thoughts

In the last post I remarked about the American Cancer Society statistic that only 8% of patients with Stage 4 renal carcinoma survive past 5 years. So there you are. My focus is to be among the 8%! 

But attitude is so important. On a daily basis I tell myself - "I am going to beat this thing, and if it is unbeatable, I am still going to beat this thing. Conversely if it is really on the way out and I have nothing left to beat, I am going to behave as if and continue to beat it anyway!

On Wednesday June 8 I had my appointment with Dr A Fairey, my surgeon of much renown (he brought me back from death's door, that's why). Two or three times he remarked how good and healthy I looked. And I told him that my weight was within a pound or two of my weight when I returned from the hospital in mid December. I was 179 then, and I am 178 this morning for example.

However, here is the sobering thought. He finished his few remarks with saying in effect that my recovery was proceeding very well, and he was pleased that I was not on any medication or chemotherapy "yet". Yikes! The yet-word is scary. In other words he expects is to come back, even if it hasn't shown any growth "yet," which is in keeping with all I have read so far about renal carcinoma - it often recurs within two years of seeming remission, and that it is resistant to chemotherapy.

So I continue my rant about chemotherapy and radiation. These treatment protocols are meant to reduce the size of tumours and slow their growth, rather than to kill the cancer cells that cause the tumour growth in the first place through epigenetics (the study of changes in organisms caused by modification of gene expression rather than alteration of the genetic code itself) to bring about programmed cell death or apoptosis. However it is true that the latest chemo-therapies like Sunitinib do work with the immune system to help target cancer cells. At least that is my understanding.

The whole idea of epigenetics is that we can control our genetic expression through out own biology. Our genes built us but how they are expressed to cause or control disease for example is up to us. Just a few minutes ago I received a notification from Hay House by email of new publications that address this very issue (see: http://links.hayhouse.mkt5657.com/servlet/MailView?ms=NTE1OTc0MTAS1&r=MTk1NDU1MDk5MjAxS0&j=OTQxODc4ODgxS0&mt=1&rt=0).

There are two aspects to my health regimen right now. One is to improve and protect the health of my remaining kidney and the other is to kill the clear cell renal carcinoma. I am tackling kidney health through mitochondria-targeted antioxidants like Coenzyme Q10 and R-Lipoic acid (see: http://www.ncbi.nlm.nih.gov/pubmed/21356165). I am also steering away from red meats, pork especially and processed meats of all kinds to help kidney function. I am concentrating on fish and chicken products and poached or boiled eggs for protein. Eggs are not a cholesterol problem I am told if they are cooked at low boiling temperatures (boiled or poached, NOT fried or scrambled).

And oh yes, there is the problem of the GFR rating which is supposed to be above 60, where as my remaining kidney has had a number generally between 35 and 40. at Cross Cancer Institute they will not give the intra-venous enhancing radiological stuff to improve the deatail in a CT scan if the GFR is below 40. Dr Fairey, who is an expert in kidney health, says as long as this number is greater than 30 he is not worried. So my goal with the super antioxidants help is to increase that GFR thing to above 40. Just to jog memories mine included eGFR is short for estimated glomerular filtration rate. Your eGFR is a number based on your blood test for creatinine, a waste product in your blood. It tells how well your kidneys are working

The key things about killing the cancer cells is choosing foods with a low glycemic index to help lower sugar as a fuel for cancer cells, and to boost my immune system by taking zinc to improve thymus health (the thymus produces the cancer-killing T-cells) and injecting Iscador which helps the immune system target cancer cells as well (see: http://www.oicc.ca/uploads/mistletoe-health-professional.pdf)

To close this post, here is a neat video showing how T-cells attack and kill cancer cells: https://m.reddit.com/r/gifs/comments/4lcqko/tcell_killing_a_cancer_cell/ . Really neat how you can take videos with a microscope!

Tuesday, 7 June 2016

Sobering thoughts - but hope and joy are necessary

I am not out of the woods yet, just a burst of sunshine in a clearing! I decided to search out kidney survival rates and here is what I found: 

Survival rates by AJCC TNM stage
Stage5-Year Survival Rate
I81%
II74%
III53%
IV8%

Survival rates for kidney cancer by stage - American Cancer Society

www.cancer.org/cancer/kidneycancer/detailedguide/kidney-cancer-adult-survival-rates

Kind of looks dire, doesn't it? And they also say that regression of kidney cancer after removal of a kidney is "extremely rare". So although my cancer seems to be receding I cannot relax my nutritional vigil.

Today I am travelling to Edmonton for a follow-up appointment with Dr A Fairey, the surgeon who saved my life on December 06, 2015. One of my interests will be to ask him how to improve the health of the one kidney that I still have. That must be considered seriously so that I can have the intravenous when I have my next CT scan which will be August 23, 2016, 2 1/2 months away now.

I now have my Feb 3 and May 16 radiologist's reports, and I have compared them with considerable wonder to the report of Dec 3, 2015 just before my operation. Yes, it is a wonder that I am alive and quite well. More about that in the next blog entry.

One of my favourite books has become Nina Joy's "Adventures of a Cancer Maverick". I think her surname, Joy, is interesting because joy is one of her main ingredients for healing and long-term survival. Here is the cover for her book just in case you are interested in finding a copy: 




Product Details

Saturday, 28 May 2016

Living in the Miracle!

It is a month and a day since my last entry and a lot has happened - all good by the way. I want to give a summary of the mystery of mystory! Because mystory indeed remains a mystery and a wonder and a miracle.

I will begin with the end. I flew to Edmonton from Inuvik on Canadian North as planned on Sunday afternoon May 15. A full chest-abdomen-pelvic area CT scan on the 16th followed by a consult with Dr North at Cross Cancer Institute (CCI) on the 17th. Then early on Tuesday this week, May 24 Dr North phoned from CCI to discuss the Radiologist Report of the 16th CT scan.

Here are the results. The abdominal cavity is clear of any cancer indication and the renal artery and renal vein are now clear as well. The only complications now are a slightly enlarged lymph node in the chest area, and 2 small 4mm (less than 1/4 inch) diameter nodules in the lungs which could be anything, not necessarily cancer. These seem pretty much the same as in the February 3 results that showed how greatly the cancer had shrunk and been reduced. They could be remnants of the blood clots, thrombi that were very evident in my lungs according to the CT scans just prior to Dec 6. 

As far as the enlarged lymph node is concerned it is definitely not due to TB (tuberculosis) since I tested negative for TB in February. The lymph node might be swollen still as a remnant of the cancer invasion and part of the healing process.

The actual Radiologist Reports for May 16 and February 3 are in the mail and I will get them this next week. When I get them I will provide more detail. And I will also like to go through the detail of how my cancer episodes began. I now have a complete copy of my medical file that goes back in detail to 2014 when my health was just fine thank you very much. I will also talk about my kidney health. That is very important now that I only have one. 

The fact that I am also cancer-free now really is a miracle. RCC (Renal Cell Carcinoma) is not known for quick cures, and in fact some reports say it resists both radiation and chemotherapy. It also may recur during the next 24 months from now. So over and out for now.

Wednesday, 27 April 2016

Recovery continued




















There is one more book that is indeed worth reading about a cancer survivor. The book is: 
Teva Harrison, In Between Days: a memoir about living with cancer, House of Anansi Press Inc, 2016. It is a very personal graphic novel, with short essays interspersed with graphic story. Order it from your favourite bookseller today.

I am still faced with the medical communication challenge where three hospitals are involved in the ongoing monitoring of my renal carcinoma. The Cross Cancer Institute in Edmonton sometimes communicates with Stanton Hospital in Yellowknife, which sometimes communicates with the Inuvik Regional Hospital, which sometimes communicates with me. I used to say that tongue in cheek that cancer recovery is my full time job, but now I know it to be true. I am left as the one person who must make sure that communications actually take place, and that doctors and other staff actually follow through. This is complicated by the fact that Cross Cancer does not communicate AT ALL with my doctor here in Inuvik. If something needs to be in my medical file, it is up to me to find it and make sure a copy makes it to the file! Sometimes it gets exhausting.

Just today I have read of case studies about the role of humble asparagus in curing cancer. It is indeed a powerful natural healer as you will find in multiple sources on the Internet. So turmeric (or curcumin, the active ingredient) and asparagas seem to be the primary plant-based healers. With other antioxidants like blueberries and many vegetables providing nutritional support.

Monday, 25 April 2016

Continuing Recovery at home in Inuvik



At last I have new dates for a cancer status appointment. As mentioned in my last post, April 11 didn't turn out in Yellowknife. It turns out that the CT Scan equipment in Yk was not working during that week when Dr North of Cross Cancer was in town. So the next dates are May 16 and 17 in Edmonton at Cross Cancer Institute. CT scan on 16th and consultation with Dr North on 17th. Again, because of my hearing disability, Sandra will accompany me on the journey. I am hopeful for the best because I am feeling very good, energy has returned, the old irritating cough has subsided. It is likely the cough was indicating all not well in my lungs.

One concern I have is a week bit of anger against people who profit from cancer anxiety in recovery. There is one particular CD-selling business that has had several "free" online video episodes that has particularly attracted my ire. Here is some text from an email I sent that explains the thing:

"Some of you may be watching videos from something called The Truth about Cancer. AVOID THIS ONLINE PROGRAM. It is all about selling videos. Except for some sincere cancer survivor stories it is all about sensationalism and health-related conspiracy theories. One of the so-called experts Mike Adams - Health Ranger is under investigation for promoting murder of scientists (see for example: http://blogs.discovermagazine.com/…/shining-light-mike-ad…/…). In my watching of this series I have seen nothing new in true things about cancer growth or treatment that I didn't already know, and I have seen a lot of misleading junk."

I know that not all people have agreed with me on this, but featuring a quack like Mike Adams is the rotten apple that spoils the barrel! Also I have been getting an average of 6 emailsl a day from this Truth about Cancer outfit. And the last couple of days of the "free" episodes the used car salesman running the show has been virtually pleading: please buy my CDs. And oh yes, you can get the Silver collection or better yet the Gold collection, etc etc ad nauseam.

And I am comforted that my naturopath considers this Truth about Cancer programming as garbage that should be illegal! My nutritionist also was NOT impressed. So there you have a professional consensus.

I thought I would not give a list of books that I have found useful and compelling regarding cancer recovery:
1) Cancer Fighting Kitchen - Rebecca Katz, Ten Speed Press (2009) - a great cookbook!
2) Mind over Medicine - Lissa Rankin, MD, Hay House, Inc., distributed in Canada by Raincoast Books (2013) - a quite general book but includes reference to cancer recovery
3) The Definitive Guide to Thriving after Cancer - Lise N Alschuler and Karolyn A Gazella, Ten Speed Press (2013) - this is a second more readable edition to the 2011 publication Five to Thrive, Active Interest Media, Inc. (2011)
4) Wondering who you are - Sonya Lea, Tin House Books (2015) - a well-written memoir by Sonya Lea focusing on the near death and brain injury of her husband, and the long road to partial recovery.
5) The Adventures of a Cancer Maverick - Nina Joy, The Solopreneur Publishing Company Ltd, 9 High Farm Meadow, Badsworth, West Yorkshire WF9 1PB (2014) - www.thesolopreneur.co.uk - a great book about a personal cancer recovery journey, emphasizing joy and attitude!
6) Beating Cancer with Nutrition - Patrick Quillin with Noreen Quillin, Bookworld (1994) - out of print but you may find a second hand copy on Abe Books
7) Adjuvant Nutrition in Cancer Treatment - Patrick Quillin and R Michael Williams, editors, Cancer Treatment Research Foundation (1993) - believed out of print but you may find a used copy on Abe Books. This book presents research current only to 1993

Well, that is all until next time. I am struggling against fear again, because of the extra month delay before I find out the status of my recovery, so joy and attitude are all important. Anxiety will only hasten cancer not defeat it.